APT training with Fitima
Marian teaching - she came to Mtwapa in Kenya in 2009
Now she has translated loads of handouts into French with the help of Danielle Robertson
The Foundation FITIMA fight for a better quality of life for handicapped children in Burkina Faso:
Interview with its founder, Hawa Drame see website www.fitima.org
Hawa Drame is the mother of two children suffering from muscular dystrophy. Biochemist by training, she worked for several years in associations of patients with rare diseases, including the AFM (French Association against Myopathies) and EURORDIS (European Organization for Rare Diseases). Arrival in Burkina Faso in 2002, she quickly informed about the conditions of care for disabled drivers, and discussed the situation with leaders of organizations of disabled people. The finding was immediate: in Burkina Faso (as in most countries of the sub-region), there are facilities for disabled adults, but the care of handicapped children is not very developed. With its experience in the field of genetic diseases in general and neuromuscular diseases in particular, it established in August 2003, the Foundation FITIMA (International Foundation Tierno and Mariam), devoted to children suffering from neuromuscular diseases in particular and disability engine in general.
Now about Fitima in French
Hawa Dramé est la mère de deux enfants atteints de myopathies. Hawa Drame is the mother of two children suffering from muscular dystrophy. Biochimiste de formation, elle a travaillé pendant plusieurs années au sein d’associations de patients atteints de maladies rares, dont l’AFM (Association Française contre les Myopathies) et EURORDIS (European Organisation for Rare Diseases). Arrivée au Burkina Faso en 2002, elle s’est rapidement informée sur les conditions de prise en charge des personnes handicapées moteurs, et a examiné la situation avec des responsables d’associations de handicapés. Le constat fut immédiat : au Burkina (comme dans la plupart des pays de la sous-région), il existe des structures pour les adultes handicapés, mais la prise en charge des enfants handicapés moteurs n’est que très peu développée. Forte de son expérience dans le domaine des maladies génétiques en général et des maladies neuromusculaires en particulier, elle a créé, en août 2003, la Fondation FITIMA (Fondation Internationale Tierno et Mariam), consacrée aux enfants souffrant de maladies neuromusculaires en particulier et de handicap moteur en général.
